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Program is subject to change
Space limited - first-come, first-served
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Medical
Medical
PWBD
PWBD
WFH
WFH
WGBD
WGBD
Psychosocial
Psychosocial
Nurses
Nurses
MSK
MSK
Laboratory Sciences
Laboratory Sciences
Dental
Dental
Interpretation in <b>FRENCH AND SPANISH</b>
Interpretation in FRENCH AND SPANISH

Schedule by day

Schedule by day

  • Monday, April 22, 2024
  • 09:00 – 09:45 CEST
    MO-PL-G - Inaugural plenary

    Chair: Alain Baumann, MBA (he/him/his) – World Federation of Hemophilia

    Speaker: Cesar Garrido – World Federation of Hemophilia

    Speaker: Glenn Pierce, MD, PhD – World Federation of Hemophilia

    WFH

  • 09:45 – 10:45 CEST
    MO-PL-JOINT - PLENARY: Safety

    Chair: Glenn Pierce, MD, PhD – World Federation of Hemophilia

    Speaker: Mark W. Skinner, JD (he/him/his) – Institute for Policy Advancement Ltd

    Speaker: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

    Speaker: Radoslaw Kaczmarek, PhD (he/him/his) – Wells Center for Pediatric Research, Indiana University School of Medicine

    Panelist: Víctor Jiménez-Yuste, PhD, MD (he/him/his) – La Paz University Hospital

    Panelist: Barbara Konkle, MD (she/her/hers) – University of Washington

    Speaker: Carlos Safadi Márquez – Fundación de la Hemofilia (Argentina)

    WFH

  • 10:45 – 11:30 CEST
    COFFEE BREAK/MODERATED POSTER SESSIONS
  • 11:30 – 12:30 CEST
    MO-FP-01 - Free paper session: Pediatrics, inhibitors, and rare bleeding disorders

    Chair: Rubén Berrueco, MD, PhD – SJD Barcelona Children's Hospital

    Medical

  • 11:30 – 12:30 CEST
    MO-MED-01 - Comorbidities & aging

    Co-Chair: Miguel A. Escobar, MD – University of Texas

    Co-Chair: Anabela Aires, MD (she/her/hers) – Centro Hospitalar Universitário Lisboa Central

    Medical

  • 11:30 – 12:30 CEST
    MO-MSK-01 - Pain management: Balancing theory and practice

    Co-Chair: Lize F.D van Vulpen, MD, PhD (she/her/hers) – UMC Utrecht

    Co-Chair: Cesar Haddad, MBA – Lebanese Association for Hemophilia

    MSK

  • 11:30 – 12:30 CEST
    MO-WFH-01 - Increasing access to treatment

    Chair: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

    WFH

  • 11:30 – 12:30 CEST
    MO-PWBD-01 - Women with bleeding disorders: Guidelines for a (true) comprehensive approach

    Chair: Wolfgang Miesbach, MD (he/him/his) – Department of Coagulation Disorders and the Comprehensive Care Haemophilia Centre at the Goethe University Hospital

    PWBD

  • 12:30 – 13:45 CEST
    LUNCH BREAK
  • 14:00 – 15:15 CEST
    MO-DEN-01 - The importance of oral health in Quality of Life for PWBD

    Chair: Lochana Nanayakkara, BDS FDSRCS MSc FDSRCSEd (she/her/hers) – Royal London Hospital

    Dental

  • 14:00 – 15:15 CEST
    MO-LAB-01 - Laboratory diagnosis of VWD

    Co-Chair: Emna Gouider, MD – Aziza Othmana Hospital

    Co-Chair: Pierre Toulon, PhD (he/him/his) – Université Côte d'Azur and Hôpital Pasteur – CHU Nice

    Laboratory Sciences

  • 14:00 – 15:15 CEST
    MO-MED-02 - Gene therapy

    Co-Chair: Johnny Mahlangu, MBBCh, MMed – University of the Witwatersrand and NHLS

    Co-Chair: Steve Pipe – Michigan Medicine Hemophilia/Coagulation | C. S. Mott Children's Hospital

    Medical

  • 14:00 – 15:15 CEST
    MO-MSK-02 - Long-term joint health monitoring in hemophilia: From childhood to adulthood

    Co-Chair: Annette von Drygalski, MD. PharmD, RMSK (she/her/hers) – University of California

    Co-Chair: Merel Timmer, PT PhD – UMC Utrecht

    MSK

  • 14:00 – 15:15 CEST
    MO-PWBD-02 - PANEL: Ageing in bleeding disorders - comparing care for women and men

    Chair: Randall Curtis, MBA (he/him/his) – The Hemophilia Foundation of Northern California

    PWBD

  • 15:15 – 16:00 CEST
    COFFEE BREAK/MODERATED POSTER SESSIONS
  • 15:15 – 16:15 CEST
    WFH Twinning Event
  • 16:00 – 17:00 CEST
    MO-FP-02 - Free paper session: Oral health

    Chair: Norjehan Yahaya, DDS(Dalhousie), DCD(Melbourne) – Kuala Lumpur Hospital, Ministry of Health Malaysia

    Dental

  • 16:00 – 17:00 CEST
    MO-MED-03 - Bleeding disorder registries

    Co-Chair: Joseph John Manthanathu, MD, MD, MBA (he/him/his) – Christian Medical College

    Co-Chair: Rubén Berrueco, MD, PhD – SJD Barcelona Children's Hospital

    Medical

  • 16:00 – 17:00 CEST
    MO-MED-04 - Acquired bleeding disorders

    Co-Chair: María Eva Mingot-Castellano (she/her/hers) – Hospital Universitario Virgen del Rocío, Instituto de Biomedicina de Sevilla, Universidad de Sevilla

    Co-Chair: Alessandro Casini, MD – Faculty of Medicine, Division of Angiology and Hemostasis, University of Geneva

    Medical

  • 16:00 – 17:00 CEST
    MO-PWBD-03 - coreVWD: What Does It Mean For You?

    Chair: Michelle Lavin, MB BCh BAO, PhD, FRCPath (she/her/hers) – National Coagulation Centre, St. James's Hospital

    PWBD

  • 16:00 – 17:00 CEST
    MO-PSYCH-01 - Education & schooling considerations with PWBDs

    Chair: Jane Portnoy, BA Social Work, grad dip Family Therapy (she/her/hers) – Alfred Health

    Psychosocial

  • 16:00 – 18:15 CEST
    MO-MSK-WKSP - Musculoskeletal workshop 2: Joint mobilization and manual therapy workshop

    Chair: Rubén Cuesta-Barriuso, Sr., PhD (he/him/his) – University of Oviedo

    MSK

  • 17:15 – 18:15 CEST
    MO-FP-03 - Free paper session: Women and girls' health and research

    Chair: Sarah O'Brien, MD, MSc – The Ohio State University, Nationwide Children's Hospital

    WGBD

  • 17:15 – 18:15 CEST
    MO-MED-05 - Benefits and risks of novel therapies: Redefining hemophilia goals in the era of new technologies

    Co-Chair: Maria Teresa Alvarez Román, MD, PhD (she/her/hers) – University Hospital La Paz

    Co-Chair: Cedric Hermans, MD, PhD (he/him/his) – Cliniques Universitaires Saint-Luc

    Medical

  • 17:15 – 18:15 CEST
    MO-NUR-01 - Don't leave anyone behind - rare condition diagnosis, resource & management

    Chair: Erica Crilly, MN NP (she/her/hers) – BC Children's Hospital

    Nurses

  • 17:15 – 18:15 CEST
    MO-PWBD-04 - Quality of life: Intimacy and sexuality through the lifespan

    Chair: Cheryl Alexis, MBBS, FRCP (she/her/hers) – FMS Clinical Sciences

    PWBD

  • 19:30 – 20:30 CEST
    POSTER NETWORKING EVENT